young woman in Pakistan urgently needs an advocate
A young woman, Nevra, who lives with severe myalgic encephalomyelitis (ME/CFS) is issuing an urgent call out for an in-person medically knowledgeable ME ally and advocate. She lives in Pakistan,…
Carla very severe ME/CFS patient loses sectioning appeal tribunal
Carla, a very severe myalgic encephalomyelitis (ME/CFS) patient has lost her appeal against West Middlesex hospital. Doctors sectioned Carla Naoum under the Mental Health Act as they believed her extreme…
NHS public consultation support with the form if you’re chronically ill
The new Labour Party government has recently launched an NHS public consultation – to mixed responses. The Canary’s Dr Julia Grace Patterson approached it with caution, while some other media…
campaigner launches hospital charter for patients
Tuesday 29 October is an auspicious day for the myalgic encephalomyelitis (ME/CFS) community. Crucially, it marks three years to the day the National Institute for Health and Care Excellence (NICE)…
a poem describes living with ME/CFS
Living with myalgic encephalomyelitis (ME/CFS) is physically devastating – but the social isolation that comes with it is often less discussed. Family and friends don’t always understand the disease’s hallmark…
Severe ME/CFS patient has now been sectioned by the UK NHS
NHS West Middlesex University Hospital has just placed very severe myalgic encephalomyelitis (ME/CFS) patient Carla Naoum under a Section 2 of the Mental Health Act order. It comes as the…
DWP PIP process exposed in secret reports as dire for ME/CFS
A tranche of reports the Department for Work and Pensions (DWP) buried – including one for nearly two years – has exposed how it has been utterly failing chronically ill…
ME/CFS patient forced onto psychiatric ward by parents & medics
Abusive parents of a young woman in Greece who lives with severe ME/CFS have forced her onto a psychiatric ward against her will. Katiana is now trapped in a Greek…
NHS ME/CFS module draft copy has been leaked to the Canary
The Canary has been leaked a draft copy of the second NHS eLearning module on myalgic encephalomyelitis (ME/CFS). It comes after patients have been expressing growing concern on social media…
the EDS & ME/CFS link
Every October, it’s Dysautonomia Awareness Month: shedding light on a group of conditions that involve dysfunction of the autonomic nervous system (ANS). One of the most discussed conditions under the…
where empathy does more harm than good
On Friday 27 September, the last day of the Maeve Boothby O’Neill inquest, we heard that a much needed specialist service for myalgic encephalomyelitis (ME/CFS) is not on the NHS…
shocking 3D room scans show life with severe disease
A former architecture student living with severe myalgic encephalomyelitis (ME/CFS) has created a series of 3D room scans to show what life with the devastating disease is like. From the…