Long Covid has left me feeling worthless, Labour is making it worse
My name is Sam. I am 52. I am doubly disabled. I am Autistic and I have been disabled with long Covid since 15 March 2020. There are two parts…
Macbeth cancellations are the thin end of the Covid-19 wedge
‘Out, damned spot! out, I say … Hell is murky! … What need we fear who knows it, when none can call our power to account?’ – Act 5, Scene…
David Tennant show cancellations show threat of Covid
The cancellations of Macbeth, with David Tennant in the lead role, has led to questions being raised around the ongoing ambivalence to the continuing public health threat of coronavirus (Covid-19)…
where empathy does more harm than good
On Friday 27 September, the last day of the Maeve Boothby O’Neill inquest, we heard that a much needed specialist service for myalgic encephalomyelitis (ME/CFS) is not on the NHS…
ME/CFS and long COVID face a deadly morass in modern medicine
Historically, medicine has had a problem with women, especially those who were not married. Sounds unrealistic? The nineteenth century wasn’t that long ago, and many diagnoses and treatments of physical…
a decade of campaigning amid medical stagnation
As part of the Canary and the Chronic Collaboration’s Amplify training programme, founder of ME Foggy Dog and Stripy Lightbulb CIC Sally Callow writes for us on her 10 years…
Long Covid not even on the general election agenda is very 2024
It doesn’t really matter who gets elected during this years general election for the 1.9 million people living with long Covid or the hundreds of thousands living with myalgic encephalomyelitis…
Long Covid exercise programme: council offers harmful treatment
A council in Northamptonshire has launched a recovery scheme for people living with long Covid. However, the 12-week long Covid exercise programme is centred round incremental exercise. Of course, this…
worker calls out Covid response
It’s day nine of the general election campaign and soon-to-be “former prime minister” Sunak has scuppered any pretence there ever was that he’s a decent, down-to-earth, every-day bloke. Not that…
Lightning Process gaslights long Covid patients
The BBC has exposed how an insidious group of predatory charlatans have been gaslighting long Covid patients. It revolves around a pseudoscientific treatment known as the ‘Lightning Process’. It would…
Unite To Fight conference on ME/CFS & long Covid announced
A groundbreaking international and community-driven long Covid and myalgic encephalomyelitis (ME/CFS) conference – ‘Unite To Fight’ – is about to take place for the first time. Already, the event is…
research featured in a campaign to shake it up
A new campaign seeks to shake up the dire state of funding for biomedical research into myalgic encephalomyelitis (ME). In time for ME Awareness Day on 12 May, a volunteer…